Lydon says it’s hard to find the right nurses: “She has to trust the person she’s with. She’s burned down kitchens and fled from recording studios, convinced that people were trying to kill her. She can’t cope with the airports, the stress, the bright lights, the crowds.” Nora requires around-the-clock care, and panics without Lydon to fill in her memory gaps. He’s already worrying about not being able to take her on his speaking tour for the book (postponed until 2021 because of the pandemic). Apart from the odd day working with PiL, he looks after Nora (“Babbie”) on his own, full-time. Their experiences with Alzheimer’s feature in Lydon’s new book, I Could Be Wrong, I Could Be Right, a collection of his “uncensored” thoughts. I can feel her pain, I’ve been through it.” It gives me something in relation to dealing with her. “I know that feeling of not knowing who and where you are in a precise moment. It helps him empathise with Nora’s Alzheimer’s, he says. The meningitis put him in a coma for months, and, when he woke up, he’d lost his memory. Even when he’s not distrusting technology, Lydon has his signature intense stare – from poor vision caused by childhood spinal meningitis.
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